Greenwich family set to defeat uncommon infancy disease GREENWICH — For the family of Greenwich inhabitants Andrea & Phil Marella, the battle versus Niemann -Pick type C illness has always been deeply personal.
They formed the Dana’s Angels study Trust in 2002 to lift money to study Niemann-Pick type C & find better curing & a cure.
Greenwich family set to defeat uncommon infancy illness
“As a parent you must save in mind which none is fast sufficient,” Phil Marella said.
It has been used as a delivery for other drugs, however by Niemann-Pick type C illness patients, it could act as a sponge & cause cells to give up additional cholesterol.
“The study has shown which if we could find a cure for Niemann-Pick type C illness, we going to have better treatments for Alzheimer’s illness & heart illness & HIV virus/AIDS virus,” Andrea Marella said.
mother runs fb campaign to lift awareness of uncommon illness
referring to STATEN ISLAND, N.Y. — As the mom of a child by a uncommon illness — Phelan-McDermid syndrome (PMS) — Debra Papagni is tired of hearing people ask “What is PMS?”
which’s the reason she soon released a fb campaign to both lift money & bring awareness to the illness.
She & her teenage Kids — Julia, 17, & Justin Denmark, 15 — each year take portion in the Autism Speaks Walk.
“I added a few bucks to the cost of the shirts Extremely I could donate the excess to Autism Speaks.
such as others by PMS, Drew has severe cognitive disabilities & is non-verbal.
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